Nothing to hide, nothing to fear? Part 2

Privacy is essential for informed consent.

“Whoever the suspect turns out to be, he has effectively been tailed every moment of every day for five years, and the police may — in the Government’s view — call upon the results of that surveillance without regard to the constraints of the Fourth Amendment. Only the few without cell phones could escape this tireless and absolute surveillance.”

–Chief Justice Roberts, describing the time-travel capabilities of cell-site location information, Carpenter v. US, 585 US __ (2018).

Privacy is a constitutional right

The word “privacy” isn’t in the Constitution, but it’s still a fundamental right. The right to privacy is rooted in the Fourth Amendment: “The right of the people to be secure in their persons, houses, papers, and effects, against unreasonable searches and seizures, shall not be violated…”

Privacy is so fundamental to American values that Supreme Court Chief Justice Roberts argued it ignited the American Revolution.[i] In the late 1700s, British officers would enter a private home, by force if necessary, and rummage through personal effects and papers, looking for a way to make a criminal case against the resident.

The Court tells us the basic purpose of the Fourth Amendment is “to safeguard the privacy and security of individuals against arbitrary invasions by governmental officials.”[ii] And that “a central aim of the framers was to place obstacles in the way of a too-permeating police surveillance.”[iii]

The scope of the Fourth Amendment’s guarantee of privacy has been debated over the centuries, but the intent of stopping tyranny — arbitrary power and 24/7 surveillance – is within the scope of constitutionally guaranteed privacy. SCOTUS has determined the government is involved in a Fourth Amendment search if it is collecting everything it can, engaging in 24/7 monitoring, using GPS tracking on a vehicle that can be turned on at will, “spike miking” your home to catch all the audio, and (most recently) collecting cell phone location data. The court always draws the line for privacy when information is gathered by “pervasive tracking,” “detailed and comprehensive record of a person’s movement,” “ever alert,” “exhaustive,” with a “memory that is nearly infallible.”

One of the most recent U.S. Supreme Court cases to address privacy declared it was unconstitutional for the federal government to get data from cell phone records without a warrant. The case was considered a curve ball in privacy jurisprudence because the government could simply subpoena information without a warrant if a defendant had shared that information with a third party like a bank or telephone company. The importance here is whether the government is going on a fishing expedition by requesting documents with court permission during an investigation (a subpoena), or whether they’re fairly certain the information is evidence of a crime but they don’t yet have access (a warrant).

When the Constitution was written in 1787, papers and effects were mostly physical objects, which would be safeguarded within the home. This is important because there was no internet at the time of the writing of the constitution. There was no cloud storage, no cell phones, and no GPS. Americans rejected tyranny through unfettered access to personal information at the time the Constitution was written and the Supreme Court has upheld that expectation. But the courts only uphold our rights once law is written, actions are taken, or harms are done. Laws diminishing privacy have been front and center in America for decades, especially after September 11, 2001.

The War on Terror became a war on privacy

What does September 11, 2001, have to do with health privacy? In a word, surveillance. The laws that were enacted after the 9/11 attacks ushered in a new era of federal reach into our lives. The shock of the attack on American soil and the thousands of lives lost allowed tyrannical laws like the PATRIOT Act and Project Bioshield to sail through Congress as Americans grieved and tried to manage daily life amidst a national emergency. Stand for Health Freedom readers are familiar with how Project Bioshield set the stage for the Emergency Use Authorization pharmaceuticals that are now so widely known. To refresh your memory, see these two articles: Is the Government Weaponizing Data?, and You are Part of an Experiment in Consent and Choice.

The War on Terror declared by George W. Bush after the 9/11 attacks quickly morphed from a fear of bad actors to a fear of disease. In the month after the attacks, anthrax-laced letters were sent through the U.S. Postal Service to media outlets and two senators. Five Americans died and 17 others fell ill but recovered. The letters shut down Congress, which hastened emergency passage of the bill without much scrutiny.

The PATRIOT Act (Uniting and Strengthening American by Providing Appropriate Tools Required to Intercept and Obstruct Terrorism), a 300-plus-page document, passed U.S. Congress with bipartisan support just five weeks after September 11th. The law was reauthorized in 2006 and amended in 2015.

The PATRIOT Act allowed the federal government the ability to place innocent Americans under surveillance in the name of safety in a way that had never before been allowed on American soil. As an example, former president Bill Clinton attempted to strengthen wiretap authority of the federal government after the 1995 Oklahoma City bombing, but “Congress refused, mainly because many felt loosening surveillance and records rules was unconstitutional.”[iv]

In 2002, the Homeland Security Act was passed, creating the Department of Homeland Security (DHS). DHS “boasts the first statutorily required privacy office within a federal agency.”[v]

HIPAA’s Privacy Rule was passed on April 14, 2003.

The Intelligence Reform and Terrorism Prevention Act of 2004 created the Office of the Director of National Intelligence (ODNI).

Fear of another attack and of secretive terrorists who could live among us brought the walls of privacy down in America. In exchange for a feeling of security, people were willing to ignore or accept levels of government surveillance that would have previously been unthinkable.

The CDC buys cell phone data and the DHS has an Office of Health Safety

At a July 2022 U.S. Congressional hearing on the American Data Privacy and Protection Act (ADPPA), one lawmaker highlighted the importance of privacy in health by describing the CDC’s purchase of location data to track lockdown compliance and for other “numerous CDC priorities.”[vi] [vii] She cited the activity as a reason to pass the federal privacy legislation, but with HIPAA as an exception carved out in this bill, the CDC would not be affected because HIPAA doesn’t apply to public health (more on this below).

The ADPPA focuses on consumer protection from third-party data handlers, like social media, cell phones, and more. But you might be surprised at the access federal agencies have to your health information and the major push to deeply expand this reach in the name of public health and the greater good. The information may or may not be anonymous or “de-identified.” Some wonder if any data can truly be de-identified considering the exploding artificial intelligence (AI) field.[viii]

Some ways federal agencies outside of HHS utilize health data:

  • The Census Bureau is a central hub for health data throughout government agencies. Americans have been filling out a census every 10 years since 1790, sometimes including economic and “social statistics,” or health information.[ix] The Census Bureau is busy every year though, conducting other voluntary surveys, including the National Health Interview Survey. “The main objective of the NHIS is to monitor the health of the U.S. population through the collection and analysis of data on a broad range of health topics such as medical conditions, health insurance, doctor’s office visits, physical activity, and other health behaviors.”[x] They also conducted Household Pulse Surveys to delve into the well-being of American households during the pandemic, which included questions on how stimulus checks were used.[xi]
  • The Federal Trade Commission has a project called “Mapping Broadband Health in America,” which overlays broadband coverage with health access, quality, and behavior, based on data obtained from the Census Bureau, CDC, Geolytics, and the Robert Wood Johnson Foundation.[xii]
  • The Department of Homeland Security (DHS) has a newly reorganized Office of Health Security,[xiii] as well as an Office of Biometric Identity Management (biometrics are considered PHI under HIPAA). The DHS also has a contract with Amazon to house biometric information on their servers.
  • The Environmental Protection Agency collects health information to conduct environmental assessments of residential properties.[xiv]
  • The National Archives contain numerous Systems of Records, one of which is a collection of requests for accommodations for religion or disability by their employees, recently revised to explicitly note religious exemption requests to COVID shot requirements.[xv] This is not the only federal agency that has updated or created a System of Records relating to COVID guidance or mandate compliance. Other agencies include the Department of the Interior,[xvi] the Selective Service System,[xvii] the United States Postal Service,[xviii] and the Securities and Exchange Commission,[xix] just to name a few. (If you’d like to see more, go to the federal register and search “SORN AND COVID.”)

The activities described above would be in the name of public health or national security, except the data the Census Bureau collects through voluntary participation in surveys. HIPAA doesn’t apply to these federal agencies; they would be governed by the Privacy Act of 1974, which does not require de-identification of data.

According to David Ferro of the National Archives, “The Privacy Act of 1974, as amended (5 U.S.C. 552a) (“Privacy Act”), provides certain safeguards for an individual against an invasion of personal privacy. It requires federal agencies that disseminate any record of personally identifiable information to do so in a manner that assures the action is for a necessary and lawful purpose, the information is current and accurate for its intended use, and the agency provides adequate safeguards to prevent misuse of such information. NARA intends to follow these principles when transferring information to another agency or individual as a “routine use,” including assuring that the information is relevant for the purposes for which it is transferred.”[xx]

Nothing to hide, nothing to fear?

Protecting the privacy of individuals protects society at large. When we mix fear of publicity with the idea that we can have privacy, we are making an assumption that the activity or information has some bad quality to it. But most things society values privacy for are not inherently bad. The health and medical decisions we make, the diagnoses, and the family history found in our DNA fall into this category.

If we allow our health data to be transferred, used, disclosed, or stored without our informed consent, we are opening the door for completely inappropriate or even dangerous actions to be taken against us. If we allow government and businesses to demand our COVID shot status, for example, we allow discrimination that destroys liberty.

“[T]he vast trove of information that is being accumulated about Americans is like a loaded weapon that can be trained on selected Americans at any time by officials hungry for power and control.”[xxi]

A person may think they have nothing to hide and thus are safe from being treated as a criminal or an outcast. What about when the rules change? What if the rules are enforced only against certain individuals? Who will be the suspect then?

We are living in the Information Age. Privacy will become a thing of the past unless we take a stand against complete unfettered access to our personal data – health or otherwise.

References & Sources

[i] Carpenter V. United States, 585 US ___ (2018) at 5.

[ii] Carpenter V. United States, 585 US ___ (2018) at 4 (internal quotes omitted).

[iii] Carpenter V. United States, 585 US ___ (2018) at 4, citing US v. Di Re, 332 US 581, 595 (1948) (internal quotes omitted).



















Jill Hines

Directory of Advocacy
A former banker turned homeschool mom, Jill Hines began researching alternatives to conventional medicine in 2010 and what she discovered changed the trajectory of her life. She corrected a worrisome health issue, and embraced a natural approach to wellness. Advocating for informed consent and parental rights became a full-time mission when she joined the board of the Georgia Coalition for Vaccine Choice and later became the co-director of Health Freedom Louisiana. Due to her advocacy efforts during the COVID crisis, Jill was one of 25 Louisianans selected by Central City News as “a hero of the constitutional crisis.” She was also presented the Impact Award for Outstanding Public Service from the government watchdog organization Citizens for a New Louisiana. Jill now represents hundreds of millions of Americans who experienced censorship due to the Biden administration's efforts to suppress disfavored speech as a plaintiff in the landmark lawsuit Missouri v. Biden. Jill holds a marketing degree from Louisiana Tech University and now passionately “sells” health freedom full-time. Serving as Stand for Health Freedom’s advocacy director provides an incredible opportunity to advance the growing movement to preserve the sacred right to refuse unwanted medical interventions for ourselves and our children without fear of retribution.
“We have lived through a terrifying societal, psychological, and medical experiment which afforded us a knowledge that our forefathers tried to impart and we can no longer ignore: Our freedom is tenuous. For our children’s sake, the time is now to take a stand for health freedom.”

Chrissy Scott

Executive Assistant and Social Media Manager

A labor and delivery nurse with a lifelong passion for maternal and fetal health, Chrissy Scott left her job of 19 years after learning the truth about the harms caused by the medical system. In 2009, she was mandated by her employer to receive the H1N1 vaccine during her first trimester of pregnancy with her second child. She was assured that the vaccine was “safe and effective” for pregnant women, but her son was born with a kidney defect that could have been fatal. She didn’t connect the dots to vaccine injury until several years later when the declining health of her oldest son drove her to seek answers outside of allopathic medicine.

This personal journey ignited in her a new passion for truth and transparency in health care. As SHF’s Executive Assistant, Chrissy facilitates communication and local advocacy initiatives alongside Leah Wilson for their home state of Indiana. She also manages and creates graphics for SHF’s social media accounts and the website’s swag shop.

Chrissy earned her nursing degree from Anderson University and served her entire career at her local hospital. While she’s no longer a floor nurse, her five very active boys frequently test her nursing skills! She homeschools her children and has been co-owner of a successful home décor sign business with her sister.

“Parents, being the experts on their own children, are best suited to make decisions for the well-being of their family. To do this properly, they must be given full and accurate information and be free from force or coercion.”

Ellen Chappelle


Ellen Chappelle serves as SHF’s resident wordsmith. A seasoned writer and editor, she’s enthusiastic about ensuring that our content is clear, concise, and inspiring.

Ellen is most energized by working on projects that transform lives. A truth seeker as well as a journalist, she’s disturbed by the lack of accuracy in today’s media and determined to help share fact rather than fiction. And having found greater healing with alternative approaches, she’s also passionate about preserving our freedom to make informed health choices.

Past projects include serving as regional editor of a dog magazine, color and trend specialist for a small cosmetics company, arts columnist, newspaper reporter, ghostwriter, and creator of website content for artists and small businesses.

With a degree in journalism and theatre, Ellen is also a performer. She enjoyed singing and dancing on a cruise ship and traveling with a national musical theatre tour, as well as recording industrial videos, television commercials, and radio voiceovers. She also creates handcrafted jewelry in wire, chain maille, and fused glass.

“Despite what some would have us believe, the fact remains that this nation was founded on biblical principles by people who wanted freedom to worship God and live their lives without government involvement. It’s never been more critical to fight for those rights.”


Executive Director and Co-founder

An attorney with a background in complex litigation and advocacy, Leah Wilson is passionate about children’s health and has researched and worked on child welfare issues for more than a decade.

The overmedication of children in foster care as a form of behavior management is what compelled Leah to become an advocate and foster parent. During her time as a court-appointed special advocate for abused and neglected children, Leah witnessed the rampant use of psychiatric drugs among foster kids. She also discovered that, in addition to many extensive requirements, the state had a policy that all foster children and foster families be fully vaccinated, without exception. Through her involvement in law, health and the foster care system, it became abundantly clear to Leah that the single most important issue affecting child welfare in the United States is the practice of one-size-fits-all medicine via medical mandates. This motivated Leah to expand her advocacy beyond foster care to all children nationwide and to start Stand for Health Freedom (SHF) in 2019.

A graduate of the Saint Louis University School of Law, Leah holds dual bachelor degrees in political science and Spanish from Indiana University. In addition to her advocacy work with SHF, Leah is the owner and former operations director of MaxLiving Indy, one of the largest natural health centers in the Midwest. She is also an educator on holistic health as well as a sought-after speaker on issues ranging from religious rights to greening your home.

“Parental rights and religious freedom are God-given natural rights that cannot arbitrarily be taken away by government authorities. Parents are the single most important factor in a child’s success; I stand in full support of this sacred relationship.”

Sayer JI

Director and Co-founder

Sayer Ji is a widely recognized researcher, author, lecturer, activist, and educator on natural health modalities. Among his many roles, he is an advisor to Stand for Health Freedom, a reviewer and editor of the International Journal of Human Nutrition and Functional Medicine, an advisory board member of the National Health Federation, a steering committee member of the Global GMO Free Coalition, and the co-founder and CEO of Systome Biomed Inc., a revolutionary scientific validation framework.

Most notably, Sayer is the founder of, the world’s most widely referenced, evidence-based natural health resource of its kind. He founded the platform in 2008 to provide an open access, evidence-based resource supporting natural and integrative modalities. Today, has more than a million visits per month, serving as a trusted resource on myriad health and wellness topics to physicians, healthcare practitioners, clinicians, researchers and consumers worldwide.

Sayer attended Rutgers, The State University of New Jersey, where he studied under the notable American philosopher Dr. Bruce W. Wilshire. He received a Bachelor of Arts in philosophy in 1995, with a focus on the philosophy of science. His new book, Regenerate: Unlocking Your Body’s Radical Resilience through the New Biology, was released in March 2020 and is an Amazon bestseller.

“I truly believe that education will be our greatest shield against accelerating the erosion of civil liberties, including the right to bodily sovereignty, as well as the greatest catalyst for positive change on this planet moving forward.”

Bailey Kuykendoll

Associate Director

Designer and visual marketer Bailey Kuykendoll began advocating for health and religious freedom and parental rights in 2014 after learning she was pregnant. A self-described skeptic, she’s not afraid to ask questions and do copious amounts of research to reach her own conclusions.

She’s also not afraid of hard work. As SHF’s Associate Director, Bailey truly keeps the organizational boat afloat. Working closely with our State Directors in each state, she ensures that SHF has calls-to-action for health-freedom bills and petitions on our website and across social media, spreading the word to encourage people to contact their legislators. She builds campaigns, graphics, website pages, and relationships.

Bailey earned a design degree from Harrington Institute of Design in 2008. She then served as a production assistant on several shows for HGTV, followed by working behind the scenes on the X Factor, small indie films, music videos, and documentaries. Bailey joined Health Freedom Florida after moving to the East Coast, becoming co-president of the grassroots organization in 2019. While at Health Freedom Florida, she successfully filed a state bill designed to stop discrimination based on your health status. She joined SHF in the fall of 2020.

“God placed a calling on my heart back in 2008 to be a part of something bigger for Him. Twelve years later, the opportunity came knocking to help others lean into their natural-born rights and take a stand for themselves and their families. I knew this is where I was called to be, and I have never looked back.”

Valerie Borek


Valerie Borek is a passionate advocate for health rights and family privacy. A mother of two with degrees in law and biochemistry, she is perfectly positioned to lead SHF advocates through complex health-rights policy. Her work is guided by a love for American values, uncovering truth, and a passion for empowering others. Valerie has served as SHF’s policy analyst since 2021.

Valerie’s understanding of the value of freedom to make one’s own health care choices is not just academic. Health freedom has kept her boys alive and thriving. Her choice to have home births jump-started her advocacy for health privacy. Her eldest son survived a rare and deadly cancer because her family was able to navigate medical care while holding onto values that were sometimes at odds with recommendations.

Before joining SHF, Valerie specialized in health and parenting rights at her boutique law firm, especially surrounding birth and vaccine rights. She advocated for informed consent in health care and transparent food labeling in her state. She helped found the Birth Rights Bar Association and was honored to present their argument to the Delaware Supreme Court that midwifery is not the practice of medicine, in support of a trailblazing midwife.

“Health is the foundation of how we show up in this world to love, serve, and create. Americans are blessed to live in a country that gets stronger the more we protect fundamental rights, like informed consent and privacy, so individuals and families can thrive.”

Mary Katherine LaCroix


Mary Katherine LaCroix became involved with SHF as a volunteer in 2019 when the religious exemption for childhood vaccines was at risk in her home state of New Jersey. She believes strongly that parents have the responsibility for their children’s health, education, and faith formation and that only they have the right to make medical decisions and manage their care.

She has worked in fundraising for more than 25 years at various educational, cultural, human services, and political organizations. A graduate of the University of Scranton, she holds a degree in History and English Literature.

Mary Katherine is thrilled to have this opportunity to work with and help grow SHF, believing that together we can achieve even greater impact in protecting our rights and caring for our loved ones. She enjoys spending time with her husband, two children and large extended family, as well as volunteering to support the special needs community.

“Parents are taught that they must trust the experts. That’s what we did, until we learned that the experts can be wrong and don’t always know what is best for your child. Parents should instead feel empowered by their natural, God-given ability to advocate and care for their children. SHF is here to give them the tools to do just that.”

Sheila Ealey

Political Analyst

Dr. Sheila Lewis Ealey is the founder and former director of the Creative Learning Center of Louisiana, a therapeutic day school for children who are on the autism spectrum or struggling with other nonverbal intellectual disabilities. The wife of a former U.S. Coast Guard Officer, she is also the mother of four children. Her son was diagnosed with severe autism spectrum disorder at 18 months. He is now a young man and considered moderate and emerging.

Sheila and her twins were featured in the documentary “Vaxxed.” She has traveled extensively, advocating for medical freedom. She continues to educate disenfranchised parents about their fundamental rights to religious and philosophical exemptions, their ability to live sustainably on a limited budget, and the importance of nutrition and biomedical interventions for optimum health with autism. She also writes individual homeschool curriculums for parents of children with autism or intellectual disorders. Sheila is a trustee for the Autism Trust, USA, and on the board of directors of Children’s Health Defense.

Over the past 20 years, she has educated herself to use natural healing modalities for the body and brain. Her formal education includes degrees in communication, special education curriculum, and a doctorate in Educational Leadership in Special Education. Sheila serves as an assistant content advisor and political analyst for SHF.

“It is not the Constitution’s job to protect our liberties, as it is not a philosophical document but a legal one. Its purpose is to limit the powers and authority of our federal government in hopes of preventing an intrusion upon our unalienable rights. We are obliged to maintain our government within its limits.”

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