STOP CENTRAL SURVEILLANCE OF NEWBORN DNA
Parents should have the final say on DNA testing for newborns. Once DNA is stored in a central database, it can be exposed, misused, or used in ways families never agreed to. Strategic solutions:
- Help parents understand what DNA testing at birth really means, and what could happen if that data is stored or shared.
- Keep an eye on new laws and funding that would push DNA testing into routine newborn screening, and speak up early to stop it.
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PRINTABLE RESOURCES

Informed Consent Issues With Whole Genome Sequencing in Newborn Screening

Newborn Screening or DNA Harvesting?

2026 Battles Ahead
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